{"id":311,"date":"2021-03-25T15:26:05","date_gmt":"2021-03-25T15:26:05","guid":{"rendered":"https:\/\/courses.lumenlearning.com\/suny-hvcc-healthpsychology\/?post_type=chapter&#038;p=311"},"modified":"2021-03-31T16:45:03","modified_gmt":"2021-03-31T16:45:03","slug":"quality-of-life-healthcare","status":"publish","type":"chapter","link":"https:\/\/courses.lumenlearning.com\/suny-hvcc-healthpsychology\/chapter\/quality-of-life-healthcare\/","title":{"raw":"Quality of life (healthcare)","rendered":"Quality of life (healthcare)"},"content":{"raw":"In general,\u00a0<b>quality of life<\/b>\u00a0(<b>QoL<\/b>\u00a0or\u00a0<b>QOL<\/b>) is the perceived quality of an individual's daily life, that is, an assessment of their well-being or lack thereof. This includes all\u00a0<a class=\"mw-redirect\" title=\"Emotional\" href=\"https:\/\/en.wikipedia.org\/wiki\/Emotional\">emotional<\/a>,\u00a0<a title=\"Social\" href=\"https:\/\/en.wikipedia.org\/wiki\/Social\">social<\/a>\u00a0and physical aspects of the individual's life. In\u00a0<a title=\"Health care\" href=\"https:\/\/en.wikipedia.org\/wiki\/Health_care\">health care<\/a>,\u00a0<b>health-related quality of life<\/b>\u00a0(HRQoL) is an assessment of how the individual's well-being may be affected over time by a\u00a0<a title=\"Disease\" href=\"https:\/\/en.wikipedia.org\/wiki\/Disease\">disease<\/a>,\u00a0<a title=\"Disability\" href=\"https:\/\/en.wikipedia.org\/wiki\/Disability\">disability<\/a>\u00a0or\u00a0<a class=\"mw-redirect\" title=\"Disorder (medicine)\" href=\"https:\/\/en.wikipedia.org\/wiki\/Disorder_(medicine)\">disorder<\/a>.<sup id=\"cite_ref-1\" class=\"reference\"><a href=\"https:\/\/en.wikipedia.org\/wiki\/Quality_of_life_(healthcare)#cite_note-1\">[1]<\/a><\/sup><sup id=\"cite_ref-2\" class=\"reference\"><a href=\"https:\/\/en.wikipedia.org\/wiki\/Quality_of_life_(healthcare)#cite_note-2\">[2]<\/a><\/sup>\r\n<h2><span id=\"Measurement\" class=\"mw-headline\">Measurement<\/span><\/h2>\r\nEarly versions of healthcare-related quality of life measures referred to simple assessments of physical abilities by an external rater (for example, the patient is able to get up, eat and drink, and take care of personal hygiene without any help from others) or even to a single measurement (for example, the angle to which a limb could be flexed).\r\n\r\nThe current concept of health-related quality of life acknowledges that subjects put their actual situation in relation to their personal expectation.<sup id=\"cite_ref-hqlo.com_3-0\" class=\"reference\"><a href=\"https:\/\/en.wikipedia.org\/wiki\/Quality_of_life_(healthcare)#cite_note-hqlo.com-3\">[3]<\/a><\/sup>The latter can vary over time, and react to external influences such as length and severity of illness, family support, etc. As with any situation involving multiple perspectives, patients' and physicians' rating of the same objective situation have been found to differ significantly. Consequently, health-related quality of life is now usually assessed using patient questionnaires. These are often multidimensional and cover physical,\u00a0<a title=\"Social\" href=\"https:\/\/en.wikipedia.org\/wiki\/Social\">social<\/a>,\u00a0<a class=\"mw-redirect\" title=\"Emotional\" href=\"https:\/\/en.wikipedia.org\/wiki\/Emotional\">emotional<\/a>,\u00a0<a class=\"mw-redirect\" title=\"Cognitive\" href=\"https:\/\/en.wikipedia.org\/wiki\/Cognitive\">cognitive<\/a>, work- or role-related, and possibly\u00a0<a title=\"Spirituality\" href=\"https:\/\/en.wikipedia.org\/wiki\/Spirituality\">spiritual<\/a>\u00a0aspects as well as a wide variety of disease related symptoms, therapy induced side effects, and even the financial impact of medical conditions.<sup id=\"cite_ref-pmid14613562_4-0\" class=\"reference\"><a href=\"https:\/\/en.wikipedia.org\/wiki\/Quality_of_life_(healthcare)#cite_note-pmid14613562-4\">[4]<\/a><\/sup>\u00a0Although often used interchangeably with the measurement of health status, both health-related quality of life and health status measure different concepts.\r\n<h3><span id=\"Activities_of_daily_living\" class=\"mw-headline\">Activities of daily living<\/span><\/h3>\r\n<div class=\"hatnote navigation-not-searchable\" role=\"note\">Main article:\u00a0<a title=\"Activities of daily living\" href=\"https:\/\/en.wikipedia.org\/wiki\/Activities_of_daily_living\">Activities of daily living<\/a><\/div>\r\nBecause health problems can interfere with even the most basic aspects of daily living (for example,\u00a0<a title=\"Breathing\" href=\"https:\/\/en.wikipedia.org\/wiki\/Breathing\">breathing<\/a>\u00a0comfortably, quality of\u00a0<a title=\"Sleep\" href=\"https:\/\/en.wikipedia.org\/wiki\/Sleep\">sleep<\/a>, eliminating wastes, feeding oneself, dressing, and others), the\u00a0<a title=\"Health care\" href=\"https:\/\/en.wikipedia.org\/wiki\/Health_care\">health care<\/a>\u00a0professions have codified the concepts of\u00a0<a title=\"Activities of daily living\" href=\"https:\/\/en.wikipedia.org\/wiki\/Activities_of_daily_living\">activities of daily living<\/a>\u00a0(ADLs) and\u00a0<a title=\"Activities of daily living\" href=\"https:\/\/en.wikipedia.org\/wiki\/Activities_of_daily_living#Instrumental_ADLs\">instrumental activities of daily living<\/a>\u00a0(IADLs). Such analysis and classification helps to at least partially\u00a0<a title=\"Objectivity (science)\" href=\"https:\/\/en.wikipedia.org\/wiki\/Objectivity_(science)\">objectify<\/a>\u00a0quality of life. It cannot eliminate all\u00a0<a title=\"Subjectivity\" href=\"https:\/\/en.wikipedia.org\/wiki\/Subjectivity\">subjectivity<\/a>, but it can help improve measurement and\u00a0<a title=\"Communication\" href=\"https:\/\/en.wikipedia.org\/wiki\/Communication\">communication<\/a>\u00a0by\u00a0<a title=\"Quantification (science)\" href=\"https:\/\/en.wikipedia.org\/wiki\/Quantification_(science)\">quantifying<\/a>\u00a0and by reducing\u00a0<a title=\"Ineffability\" href=\"https:\/\/en.wikipedia.org\/wiki\/Ineffability\">ineffability<\/a>.\r\n<h3><span id=\"Examples\" class=\"mw-headline\">Examples<\/span><\/h3>\r\n<div class=\"hatnote navigation-not-searchable\" role=\"note\">See also:\u00a0<a title=\"List of patient-reported quality of life surveys\" href=\"https:\/\/en.wikipedia.org\/wiki\/List_of_patient-reported_quality_of_life_surveys\">List of patient-reported quality of life surveys<\/a><\/div>\r\nSimilar to other\u00a0<a title=\"Psychometrics\" href=\"https:\/\/en.wikipedia.org\/wiki\/Psychometrics\">psychometric<\/a>\u00a0assessment tools, health-related quality of life questionnaires should meet certain quality criteria, most importantly with regard to their reliability and validity. Hundreds of validated health-related quality of life questionnaires have been developed, some of which are specific to various illnesses. The questionnaires can be generalized into two categories:\r\n\r\n<i>Generic instruments<\/i>\r\n<ul>\r\n \t<li>CDC HRQOL\u201314 \"Healthy Days Measure\": A questionnaire with four base questions and ten optional questions used by the Center for Disease Control and Prevention (CDC) (<a class=\"external free\" href=\"https:\/\/www.cdc.gov\/hrqol\/hrqol14_measure.htm\" rel=\"nofollow\">https:\/\/www.cdc.gov\/hrqol\/hrqol14_measure.htm<\/a>).<\/li>\r\n \t<li><a title=\"SF-36\" href=\"https:\/\/en.wikipedia.org\/wiki\/SF-36\">Short-Form Health Survey<\/a>\u00a0(SF-36, SF-12, SF-8): One example of a widely used questionnaire assessing physical and mental health-related quality of life. Used in clinical trials and population health assessments. Suitable for\u00a0<a title=\"Pharmacoeconomics\" href=\"https:\/\/en.wikipedia.org\/wiki\/Pharmacoeconomics\">pharmacoeconomic<\/a>\u00a0analysis, benefiting healthcare rationing.<\/li>\r\n \t<li><a title=\"EQ-5D\" href=\"https:\/\/en.wikipedia.org\/wiki\/EQ-5D\">EQ-5D<\/a>\u00a0a simple quality of life questionnaire (<a class=\"external free\" href=\"https:\/\/euroqol.org\/\" rel=\"nofollow\">https:\/\/euroqol.org<\/a>).<\/li>\r\n \t<li><a class=\"new\" title=\"AQoL-8D (page does not exist)\" href=\"https:\/\/en.wikipedia.org\/w\/index.php?title=AQoL-8D&amp;action=edit&amp;redlink=1\">AQoL-8D<\/a>\u00a0a comprehensive questionnaire\u00a0<sup id=\"cite_ref-5\" class=\"reference\"><a href=\"https:\/\/en.wikipedia.org\/wiki\/Quality_of_life_(healthcare)#cite_note-5\">[5]<\/a><\/sup><sup id=\"cite_ref-6\" class=\"reference\"><a href=\"https:\/\/en.wikipedia.org\/wiki\/Quality_of_life_(healthcare)#cite_note-6\">[6]<\/a><\/sup>\u00a0that assesses HR-QoL over 8 domains - independent living, happiness, mental health, coping, relationships, self-worth, pain, senses (<a class=\"external free\" href=\"https:\/\/www.aqol.com.au\/\" rel=\"nofollow\">https:\/\/www.aqol.com.au<\/a>).<\/li>\r\n<\/ul>\r\n&nbsp;\r\n<h2><span id=\"Utility\" class=\"mw-headline\">Utility<\/span><\/h2>\r\nA variety of validated surveys exist for\u00a0<a class=\"mw-redirect\" title=\"Health care providers\" href=\"https:\/\/en.wikipedia.org\/wiki\/Health_care_providers\">healthcare providers<\/a>\u00a0to use for measuring a patient\u2019s health-related quality of life. The results are then used to help determine\u00a0<a title=\"Therapy\" href=\"https:\/\/en.wikipedia.org\/wiki\/Therapy\">treatment<\/a>\u00a0options for the patient based on past results from other patients,<sup id=\"cite_ref-22\" class=\"reference\"><a href=\"https:\/\/en.wikipedia.org\/wiki\/Quality_of_life_(healthcare)#cite_note-22\">[22]<\/a><\/sup>\u00a0and to measure intra-individual improvements in QoL pre- and post-treatment.\r\n\r\nWhen it is used as a\u00a0<a title=\"Longitudinal study\" href=\"https:\/\/en.wikipedia.org\/wiki\/Longitudinal_study\">longitudinal study<\/a>\u00a0device that surveys patients before, during, and after treatment, it can help\u00a0<a class=\"mw-redirect\" title=\"Health care providers\" href=\"https:\/\/en.wikipedia.org\/wiki\/Health_care_providers\">health care providers<\/a>\u00a0determine which treatment plan is the best option, thereby improving healthcare through an evolutionary process.\r\n<h3><span id=\"Importance\" class=\"mw-headline\">Importance<\/span><\/h3>\r\nThere is a growing field of research concerned with developing, evaluating, and applying quality of life measures within health related research (e.g. within\u00a0<a title=\"Randomized controlled trial\" href=\"https:\/\/en.wikipedia.org\/wiki\/Randomized_controlled_trial\">randomized controlled studies<\/a>), especially in relation to\u00a0<a class=\"mw-redirect\" title=\"Health Services Research\" href=\"https:\/\/en.wikipedia.org\/wiki\/Health_Services_Research\">Health Services Research<\/a>. Well-executed health-related quality of life research informs those tasked with health rationing or anyone involved in the\u00a0<a title=\"Decision-making\" href=\"https:\/\/en.wikipedia.org\/wiki\/Decision-making\">decision-making<\/a>\u00a0process of agencies such as the\u00a0<a title=\"Food and Drug Administration\" href=\"https:\/\/en.wikipedia.org\/wiki\/Food_and_Drug_Administration\">Food and Drug Administration<\/a>,\u00a0<a title=\"European Medicines Agency\" href=\"https:\/\/en.wikipedia.org\/wiki\/European_Medicines_Agency\">European Medicines Agency<\/a><sup id=\"cite_ref-23\" class=\"reference\"><a href=\"https:\/\/en.wikipedia.org\/wiki\/Quality_of_life_(healthcare)#cite_note-23\">[23]<\/a><\/sup>\u00a0or\u00a0<a class=\"mw-redirect\" title=\"National Institute for Clinical Excellence\" href=\"https:\/\/en.wikipedia.org\/wiki\/National_Institute_for_Clinical_Excellence\">National Institute for Clinical Excellence<\/a>.<sup id=\"cite_ref-24\" class=\"reference\"><a href=\"https:\/\/en.wikipedia.org\/wiki\/Quality_of_life_(healthcare)#cite_note-24\">[24]<\/a><\/sup>\u00a0Additionally, health-related quality of life research may be used as the final step in\u00a0<a class=\"mw-redirect\" title=\"Clinical trials\" href=\"https:\/\/en.wikipedia.org\/wiki\/Clinical_trials\">clinical trials<\/a>\u00a0of experimental therapies.\r\n\r\nThe understanding of Quality of Life is recognized as an increasingly important healthcare topic because the relationship between cost and value raises complex problems, often with high emotional attachment because of the potential impact on human life. For instance, healthcare providers must refer to\u00a0<a class=\"mw-redirect\" title=\"Cost-benefit analysis\" href=\"https:\/\/en.wikipedia.org\/wiki\/Cost-benefit_analysis\">cost-benefit analysis<\/a>\u00a0to make economic decisions about access to expensive drugs that may prolong life by a short amount of time and\/or provide a minimal increase to quality of life. Additionally, these treatment drugs must be weighed against the cost of alternative treatments or\u00a0<a class=\"mw-redirect\" title=\"Preventative medicine\" href=\"https:\/\/en.wikipedia.org\/wiki\/Preventative_medicine\">preventative medicine<\/a>. In the case of chronic and\/or terminal illness where no effective cure is available, an emphasis is placed on improving health-related quality of life through interventions such as symptom management,<sup id=\"cite_ref-25\" class=\"reference\"><a href=\"https:\/\/en.wikipedia.org\/wiki\/Quality_of_life_(healthcare)#cite_note-25\">[25]<\/a><\/sup>\u00a0<a class=\"mw-redirect\" title=\"Adaptive technology\" href=\"https:\/\/en.wikipedia.org\/wiki\/Adaptive_technology\">adaptive technology<\/a>, and\u00a0<a title=\"Palliative care\" href=\"https:\/\/en.wikipedia.org\/wiki\/Palliative_care\">palliative care<\/a>.\r\n\r\nIn the realm of elder care, research indicates that improvements in quality of life ratings may also improve resident outcomes, which can lead to substantial cost savings over time. Research has also shown that quality of life ratings can be successfully used as a key-performance metric when designing and implementing organizational change initiatives in nursing homes.<sup id=\"cite_ref-pmid10794190_26-0\" class=\"reference\"><a href=\"https:\/\/en.wikipedia.org\/wiki\/Quality_of_life_(healthcare)#cite_note-pmid10794190-26\">[26]<\/a><\/sup>\r\n<h3><span id=\"Research\" class=\"mw-headline\">Research<\/span><\/h3>\r\nResearch revolving around Health Related Quality of Life is extremely important because of the implications that it can have on current and future treatments and health protocols. Thereby, validated health-related quality of life questionnaires can become an integral part of clinical trials in determining the trial drugs' value in a cost-benefit analysis. For example, the\u00a0<a class=\"mw-redirect\" title=\"Center for Disease Control and Prevention\" href=\"https:\/\/en.wikipedia.org\/wiki\/Center_for_Disease_Control_and_Prevention\">Center for Disease Control and Prevention<\/a>\u00a0(CDC) is using their health-related quality of life survey,\u00a0<a class=\"external text\" href=\"https:\/\/www.cdc.gov\/hrqol\/hrqol14_measure.htm\" rel=\"nofollow\">Healthy Day Measure<\/a>, as part of research to identify health disparities, track population trends, and build broad coalitions around a measure of population health. This information can then be used by multiple levels of government or other officials to \"increase quality and years of life\" and to \"eliminate health disparaties\" for equal opportunity.\u00a0<sup id=\"cite_ref-pmid8054098_27-0\" class=\"reference\"><a href=\"https:\/\/en.wikipedia.org\/wiki\/Quality_of_life_(healthcare)#cite_note-pmid8054098-27\">[27]<\/a><\/sup>\r\n<h3><span id=\"Ethics\" class=\"mw-headline\">Ethics<\/span><\/h3>\r\nThe quality of life ethic refers to an ethical principle that uses assessments of the quality of life that a person could potentially experience as a foundation for making decisions about the continuation or termination of life. It is often used in contrast to or in opposition to the\u00a0<a title=\"Sanctity of life\" href=\"https:\/\/en.wikipedia.org\/wiki\/Sanctity_of_life\">sanctity of life<\/a>\u00a0ethic.","rendered":"<p>In general,\u00a0<b>quality of life<\/b>\u00a0(<b>QoL<\/b>\u00a0or\u00a0<b>QOL<\/b>) is the perceived quality of an individual&#8217;s daily life, that is, an assessment of their well-being or lack thereof. This includes all\u00a0<a class=\"mw-redirect\" title=\"Emotional\" href=\"https:\/\/en.wikipedia.org\/wiki\/Emotional\">emotional<\/a>,\u00a0<a title=\"Social\" href=\"https:\/\/en.wikipedia.org\/wiki\/Social\">social<\/a>\u00a0and physical aspects of the individual&#8217;s life. In\u00a0<a title=\"Health care\" href=\"https:\/\/en.wikipedia.org\/wiki\/Health_care\">health care<\/a>,\u00a0<b>health-related quality of life<\/b>\u00a0(HRQoL) is an assessment of how the individual&#8217;s well-being may be affected over time by a\u00a0<a title=\"Disease\" href=\"https:\/\/en.wikipedia.org\/wiki\/Disease\">disease<\/a>,\u00a0<a title=\"Disability\" href=\"https:\/\/en.wikipedia.org\/wiki\/Disability\">disability<\/a>\u00a0or\u00a0<a class=\"mw-redirect\" title=\"Disorder (medicine)\" href=\"https:\/\/en.wikipedia.org\/wiki\/Disorder_(medicine)\">disorder<\/a>.<sup id=\"cite_ref-1\" class=\"reference\"><a href=\"https:\/\/en.wikipedia.org\/wiki\/Quality_of_life_(healthcare)#cite_note-1\">[1]<\/a><\/sup><sup id=\"cite_ref-2\" class=\"reference\"><a href=\"https:\/\/en.wikipedia.org\/wiki\/Quality_of_life_(healthcare)#cite_note-2\">[2]<\/a><\/sup><\/p>\n<h2><span id=\"Measurement\" class=\"mw-headline\">Measurement<\/span><\/h2>\n<p>Early versions of healthcare-related quality of life measures referred to simple assessments of physical abilities by an external rater (for example, the patient is able to get up, eat and drink, and take care of personal hygiene without any help from others) or even to a single measurement (for example, the angle to which a limb could be flexed).<\/p>\n<p>The current concept of health-related quality of life acknowledges that subjects put their actual situation in relation to their personal expectation.<sup id=\"cite_ref-hqlo.com_3-0\" class=\"reference\"><a href=\"https:\/\/en.wikipedia.org\/wiki\/Quality_of_life_(healthcare)#cite_note-hqlo.com-3\">[3]<\/a><\/sup>The latter can vary over time, and react to external influences such as length and severity of illness, family support, etc. As with any situation involving multiple perspectives, patients&#8217; and physicians&#8217; rating of the same objective situation have been found to differ significantly. Consequently, health-related quality of life is now usually assessed using patient questionnaires. These are often multidimensional and cover physical,\u00a0<a title=\"Social\" href=\"https:\/\/en.wikipedia.org\/wiki\/Social\">social<\/a>,\u00a0<a class=\"mw-redirect\" title=\"Emotional\" href=\"https:\/\/en.wikipedia.org\/wiki\/Emotional\">emotional<\/a>,\u00a0<a class=\"mw-redirect\" title=\"Cognitive\" href=\"https:\/\/en.wikipedia.org\/wiki\/Cognitive\">cognitive<\/a>, work- or role-related, and possibly\u00a0<a title=\"Spirituality\" href=\"https:\/\/en.wikipedia.org\/wiki\/Spirituality\">spiritual<\/a>\u00a0aspects as well as a wide variety of disease related symptoms, therapy induced side effects, and even the financial impact of medical conditions.<sup id=\"cite_ref-pmid14613562_4-0\" class=\"reference\"><a href=\"https:\/\/en.wikipedia.org\/wiki\/Quality_of_life_(healthcare)#cite_note-pmid14613562-4\">[4]<\/a><\/sup>\u00a0Although often used interchangeably with the measurement of health status, both health-related quality of life and health status measure different concepts.<\/p>\n<h3><span id=\"Activities_of_daily_living\" class=\"mw-headline\">Activities of daily living<\/span><\/h3>\n<div class=\"hatnote navigation-not-searchable\" role=\"note\">Main article:\u00a0<a title=\"Activities of daily living\" href=\"https:\/\/en.wikipedia.org\/wiki\/Activities_of_daily_living\">Activities of daily living<\/a><\/div>\n<p>Because health problems can interfere with even the most basic aspects of daily living (for example,\u00a0<a title=\"Breathing\" href=\"https:\/\/en.wikipedia.org\/wiki\/Breathing\">breathing<\/a>\u00a0comfortably, quality of\u00a0<a title=\"Sleep\" href=\"https:\/\/en.wikipedia.org\/wiki\/Sleep\">sleep<\/a>, eliminating wastes, feeding oneself, dressing, and others), the\u00a0<a title=\"Health care\" href=\"https:\/\/en.wikipedia.org\/wiki\/Health_care\">health care<\/a>\u00a0professions have codified the concepts of\u00a0<a title=\"Activities of daily living\" href=\"https:\/\/en.wikipedia.org\/wiki\/Activities_of_daily_living\">activities of daily living<\/a>\u00a0(ADLs) and\u00a0<a title=\"Activities of daily living\" href=\"https:\/\/en.wikipedia.org\/wiki\/Activities_of_daily_living#Instrumental_ADLs\">instrumental activities of daily living<\/a>\u00a0(IADLs). Such analysis and classification helps to at least partially\u00a0<a title=\"Objectivity (science)\" href=\"https:\/\/en.wikipedia.org\/wiki\/Objectivity_(science)\">objectify<\/a>\u00a0quality of life. It cannot eliminate all\u00a0<a title=\"Subjectivity\" href=\"https:\/\/en.wikipedia.org\/wiki\/Subjectivity\">subjectivity<\/a>, but it can help improve measurement and\u00a0<a title=\"Communication\" href=\"https:\/\/en.wikipedia.org\/wiki\/Communication\">communication<\/a>\u00a0by\u00a0<a title=\"Quantification (science)\" href=\"https:\/\/en.wikipedia.org\/wiki\/Quantification_(science)\">quantifying<\/a>\u00a0and by reducing\u00a0<a title=\"Ineffability\" href=\"https:\/\/en.wikipedia.org\/wiki\/Ineffability\">ineffability<\/a>.<\/p>\n<h3><span id=\"Examples\" class=\"mw-headline\">Examples<\/span><\/h3>\n<div class=\"hatnote navigation-not-searchable\" role=\"note\">See also:\u00a0<a title=\"List of patient-reported quality of life surveys\" href=\"https:\/\/en.wikipedia.org\/wiki\/List_of_patient-reported_quality_of_life_surveys\">List of patient-reported quality of life surveys<\/a><\/div>\n<p>Similar to other\u00a0<a title=\"Psychometrics\" href=\"https:\/\/en.wikipedia.org\/wiki\/Psychometrics\">psychometric<\/a>\u00a0assessment tools, health-related quality of life questionnaires should meet certain quality criteria, most importantly with regard to their reliability and validity. Hundreds of validated health-related quality of life questionnaires have been developed, some of which are specific to various illnesses. The questionnaires can be generalized into two categories:<\/p>\n<p><i>Generic instruments<\/i><\/p>\n<ul>\n<li>CDC HRQOL\u201314 &#8220;Healthy Days Measure&#8221;: A questionnaire with four base questions and ten optional questions used by the Center for Disease Control and Prevention (CDC) (<a class=\"external free\" href=\"https:\/\/www.cdc.gov\/hrqol\/hrqol14_measure.htm\" rel=\"nofollow\">https:\/\/www.cdc.gov\/hrqol\/hrqol14_measure.htm<\/a>).<\/li>\n<li><a title=\"SF-36\" href=\"https:\/\/en.wikipedia.org\/wiki\/SF-36\">Short-Form Health Survey<\/a>\u00a0(SF-36, SF-12, SF-8): One example of a widely used questionnaire assessing physical and mental health-related quality of life. Used in clinical trials and population health assessments. Suitable for\u00a0<a title=\"Pharmacoeconomics\" href=\"https:\/\/en.wikipedia.org\/wiki\/Pharmacoeconomics\">pharmacoeconomic<\/a>\u00a0analysis, benefiting healthcare rationing.<\/li>\n<li><a title=\"EQ-5D\" href=\"https:\/\/en.wikipedia.org\/wiki\/EQ-5D\">EQ-5D<\/a>\u00a0a simple quality of life questionnaire (<a class=\"external free\" href=\"https:\/\/euroqol.org\/\" rel=\"nofollow\">https:\/\/euroqol.org<\/a>).<\/li>\n<li><a class=\"new\" title=\"AQoL-8D (page does not exist)\" href=\"https:\/\/en.wikipedia.org\/w\/index.php?title=AQoL-8D&amp;action=edit&amp;redlink=1\">AQoL-8D<\/a>\u00a0a comprehensive questionnaire\u00a0<sup id=\"cite_ref-5\" class=\"reference\"><a href=\"https:\/\/en.wikipedia.org\/wiki\/Quality_of_life_(healthcare)#cite_note-5\">[5]<\/a><\/sup><sup id=\"cite_ref-6\" class=\"reference\"><a href=\"https:\/\/en.wikipedia.org\/wiki\/Quality_of_life_(healthcare)#cite_note-6\">[6]<\/a><\/sup>\u00a0that assesses HR-QoL over 8 domains &#8211; independent living, happiness, mental health, coping, relationships, self-worth, pain, senses (<a class=\"external free\" href=\"https:\/\/www.aqol.com.au\/\" rel=\"nofollow\">https:\/\/www.aqol.com.au<\/a>).<\/li>\n<\/ul>\n<p>&nbsp;<\/p>\n<h2><span id=\"Utility\" class=\"mw-headline\">Utility<\/span><\/h2>\n<p>A variety of validated surveys exist for\u00a0<a class=\"mw-redirect\" title=\"Health care providers\" href=\"https:\/\/en.wikipedia.org\/wiki\/Health_care_providers\">healthcare providers<\/a>\u00a0to use for measuring a patient\u2019s health-related quality of life. The results are then used to help determine\u00a0<a title=\"Therapy\" href=\"https:\/\/en.wikipedia.org\/wiki\/Therapy\">treatment<\/a>\u00a0options for the patient based on past results from other patients,<sup id=\"cite_ref-22\" class=\"reference\"><a href=\"https:\/\/en.wikipedia.org\/wiki\/Quality_of_life_(healthcare)#cite_note-22\">[22]<\/a><\/sup>\u00a0and to measure intra-individual improvements in QoL pre- and post-treatment.<\/p>\n<p>When it is used as a\u00a0<a title=\"Longitudinal study\" href=\"https:\/\/en.wikipedia.org\/wiki\/Longitudinal_study\">longitudinal study<\/a>\u00a0device that surveys patients before, during, and after treatment, it can help\u00a0<a class=\"mw-redirect\" title=\"Health care providers\" href=\"https:\/\/en.wikipedia.org\/wiki\/Health_care_providers\">health care providers<\/a>\u00a0determine which treatment plan is the best option, thereby improving healthcare through an evolutionary process.<\/p>\n<h3><span id=\"Importance\" class=\"mw-headline\">Importance<\/span><\/h3>\n<p>There is a growing field of research concerned with developing, evaluating, and applying quality of life measures within health related research (e.g. within\u00a0<a title=\"Randomized controlled trial\" href=\"https:\/\/en.wikipedia.org\/wiki\/Randomized_controlled_trial\">randomized controlled studies<\/a>), especially in relation to\u00a0<a class=\"mw-redirect\" title=\"Health Services Research\" href=\"https:\/\/en.wikipedia.org\/wiki\/Health_Services_Research\">Health Services Research<\/a>. Well-executed health-related quality of life research informs those tasked with health rationing or anyone involved in the\u00a0<a title=\"Decision-making\" href=\"https:\/\/en.wikipedia.org\/wiki\/Decision-making\">decision-making<\/a>\u00a0process of agencies such as the\u00a0<a title=\"Food and Drug Administration\" href=\"https:\/\/en.wikipedia.org\/wiki\/Food_and_Drug_Administration\">Food and Drug Administration<\/a>,\u00a0<a title=\"European Medicines Agency\" href=\"https:\/\/en.wikipedia.org\/wiki\/European_Medicines_Agency\">European Medicines Agency<\/a><sup id=\"cite_ref-23\" class=\"reference\"><a href=\"https:\/\/en.wikipedia.org\/wiki\/Quality_of_life_(healthcare)#cite_note-23\">[23]<\/a><\/sup>\u00a0or\u00a0<a class=\"mw-redirect\" title=\"National Institute for Clinical Excellence\" href=\"https:\/\/en.wikipedia.org\/wiki\/National_Institute_for_Clinical_Excellence\">National Institute for Clinical Excellence<\/a>.<sup id=\"cite_ref-24\" class=\"reference\"><a href=\"https:\/\/en.wikipedia.org\/wiki\/Quality_of_life_(healthcare)#cite_note-24\">[24]<\/a><\/sup>\u00a0Additionally, health-related quality of life research may be used as the final step in\u00a0<a class=\"mw-redirect\" title=\"Clinical trials\" href=\"https:\/\/en.wikipedia.org\/wiki\/Clinical_trials\">clinical trials<\/a>\u00a0of experimental therapies.<\/p>\n<p>The understanding of Quality of Life is recognized as an increasingly important healthcare topic because the relationship between cost and value raises complex problems, often with high emotional attachment because of the potential impact on human life. For instance, healthcare providers must refer to\u00a0<a class=\"mw-redirect\" title=\"Cost-benefit analysis\" href=\"https:\/\/en.wikipedia.org\/wiki\/Cost-benefit_analysis\">cost-benefit analysis<\/a>\u00a0to make economic decisions about access to expensive drugs that may prolong life by a short amount of time and\/or provide a minimal increase to quality of life. Additionally, these treatment drugs must be weighed against the cost of alternative treatments or\u00a0<a class=\"mw-redirect\" title=\"Preventative medicine\" href=\"https:\/\/en.wikipedia.org\/wiki\/Preventative_medicine\">preventative medicine<\/a>. In the case of chronic and\/or terminal illness where no effective cure is available, an emphasis is placed on improving health-related quality of life through interventions such as symptom management,<sup id=\"cite_ref-25\" class=\"reference\"><a href=\"https:\/\/en.wikipedia.org\/wiki\/Quality_of_life_(healthcare)#cite_note-25\">[25]<\/a><\/sup>\u00a0<a class=\"mw-redirect\" title=\"Adaptive technology\" href=\"https:\/\/en.wikipedia.org\/wiki\/Adaptive_technology\">adaptive technology<\/a>, and\u00a0<a title=\"Palliative care\" href=\"https:\/\/en.wikipedia.org\/wiki\/Palliative_care\">palliative care<\/a>.<\/p>\n<p>In the realm of elder care, research indicates that improvements in quality of life ratings may also improve resident outcomes, which can lead to substantial cost savings over time. Research has also shown that quality of life ratings can be successfully used as a key-performance metric when designing and implementing organizational change initiatives in nursing homes.<sup id=\"cite_ref-pmid10794190_26-0\" class=\"reference\"><a href=\"https:\/\/en.wikipedia.org\/wiki\/Quality_of_life_(healthcare)#cite_note-pmid10794190-26\">[26]<\/a><\/sup><\/p>\n<h3><span id=\"Research\" class=\"mw-headline\">Research<\/span><\/h3>\n<p>Research revolving around Health Related Quality of Life is extremely important because of the implications that it can have on current and future treatments and health protocols. Thereby, validated health-related quality of life questionnaires can become an integral part of clinical trials in determining the trial drugs&#8217; value in a cost-benefit analysis. For example, the\u00a0<a class=\"mw-redirect\" title=\"Center for Disease Control and Prevention\" href=\"https:\/\/en.wikipedia.org\/wiki\/Center_for_Disease_Control_and_Prevention\">Center for Disease Control and Prevention<\/a>\u00a0(CDC) is using their health-related quality of life survey,\u00a0<a class=\"external text\" href=\"https:\/\/www.cdc.gov\/hrqol\/hrqol14_measure.htm\" rel=\"nofollow\">Healthy Day Measure<\/a>, as part of research to identify health disparities, track population trends, and build broad coalitions around a measure of population health. This information can then be used by multiple levels of government or other officials to &#8220;increase quality and years of life&#8221; and to &#8220;eliminate health disparaties&#8221; for equal opportunity.\u00a0<sup id=\"cite_ref-pmid8054098_27-0\" class=\"reference\"><a href=\"https:\/\/en.wikipedia.org\/wiki\/Quality_of_life_(healthcare)#cite_note-pmid8054098-27\">[27]<\/a><\/sup><\/p>\n<h3><span id=\"Ethics\" class=\"mw-headline\">Ethics<\/span><\/h3>\n<p>The quality of life ethic refers to an ethical principle that uses assessments of the quality of life that a person could potentially experience as a foundation for making decisions about the continuation or termination of life. It is often used in contrast to or in opposition to the\u00a0<a title=\"Sanctity of life\" href=\"https:\/\/en.wikipedia.org\/wiki\/Sanctity_of_life\">sanctity of life<\/a>\u00a0ethic.<\/p>\n\n\t\t\t <section class=\"citations-section\" role=\"contentinfo\">\n\t\t\t <h3>Candela Citations<\/h3>\n\t\t\t\t\t <div>\n\t\t\t\t\t\t <div id=\"citation-list-311\">\n\t\t\t\t\t\t\t <div class=\"licensing\"><div class=\"license-attribution-dropdown-subheading\">Public domain content<\/div><ul class=\"citation-list\"><li>Quality of life (healthcare). <strong>Located at<\/strong>: <a target=\"_blank\" href=\"https:\/\/en.wikipedia.org\/wiki\/Quality_of_life_(healthcare)\">https:\/\/en.wikipedia.org\/wiki\/Quality_of_life_(healthcare)<\/a>. <strong>License<\/strong>: <em><a target=\"_blank\" rel=\"license\" href=\"https:\/\/creativecommons.org\/licenses\/by-sa\/4.0\/\">CC BY-SA: Attribution-ShareAlike<\/a><\/em><\/li><\/ul><\/div>\n\t\t\t\t\t\t <\/div>\n\t\t\t\t\t <\/div>\n\t\t\t <\/section>","protected":false},"author":142337,"menu_order":3,"template":"","meta":{"_candela_citation":"[{\"type\":\"pd\",\"description\":\"Quality of life (healthcare)\",\"author\":\"\",\"organization\":\"\",\"url\":\"https:\/\/en.wikipedia.org\/wiki\/Quality_of_life_(healthcare)\",\"project\":\"\",\"license\":\"cc-by-sa\",\"license_terms\":\"\"}]","CANDELA_OUTCOMES_GUID":"","pb_show_title":"on","pb_short_title":"","pb_subtitle":"","pb_authors":[],"pb_section_license":""},"chapter-type":[],"contributor":[],"license":[],"class_list":["post-311","chapter","type-chapter","status-publish","hentry"],"part":103,"_links":{"self":[{"href":"https:\/\/courses.lumenlearning.com\/suny-hvcc-healthpsychology\/wp-json\/pressbooks\/v2\/chapters\/311","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/courses.lumenlearning.com\/suny-hvcc-healthpsychology\/wp-json\/pressbooks\/v2\/chapters"}],"about":[{"href":"https:\/\/courses.lumenlearning.com\/suny-hvcc-healthpsychology\/wp-json\/wp\/v2\/types\/chapter"}],"author":[{"embeddable":true,"href":"https:\/\/courses.lumenlearning.com\/suny-hvcc-healthpsychology\/wp-json\/wp\/v2\/users\/142337"}],"version-history":[{"count":2,"href":"https:\/\/courses.lumenlearning.com\/suny-hvcc-healthpsychology\/wp-json\/pressbooks\/v2\/chapters\/311\/revisions"}],"predecessor-version":[{"id":317,"href":"https:\/\/courses.lumenlearning.com\/suny-hvcc-healthpsychology\/wp-json\/pressbooks\/v2\/chapters\/311\/revisions\/317"}],"part":[{"href":"https:\/\/courses.lumenlearning.com\/suny-hvcc-healthpsychology\/wp-json\/pressbooks\/v2\/parts\/103"}],"metadata":[{"href":"https:\/\/courses.lumenlearning.com\/suny-hvcc-healthpsychology\/wp-json\/pressbooks\/v2\/chapters\/311\/metadata\/"}],"wp:attachment":[{"href":"https:\/\/courses.lumenlearning.com\/suny-hvcc-healthpsychology\/wp-json\/wp\/v2\/media?parent=311"}],"wp:term":[{"taxonomy":"chapter-type","embeddable":true,"href":"https:\/\/courses.lumenlearning.com\/suny-hvcc-healthpsychology\/wp-json\/pressbooks\/v2\/chapter-type?post=311"},{"taxonomy":"contributor","embeddable":true,"href":"https:\/\/courses.lumenlearning.com\/suny-hvcc-healthpsychology\/wp-json\/wp\/v2\/contributor?post=311"},{"taxonomy":"license","embeddable":true,"href":"https:\/\/courses.lumenlearning.com\/suny-hvcc-healthpsychology\/wp-json\/wp\/v2\/license?post=311"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}